This week has been “routine”, which now means Lizzy had her blood checked, Lizzy had transfusions, Repeat.
It’s kind of weird how, if you told me 2 years ago that my daughter was going to have 3 blood transfusions in the span of 3 days, I would have probably freaked out. But now, my daughter had 3 blood transfusions over the span of 3 days this week and I consider it a “routine” and “uneventful” week. Amazing how our experiences change our perspective.
On Monday of this week, Lizzy had her blood checked and within 30 minutes, we got the call. Her ANC was 0 (i.e. she has no immune system), her platelets were 1 and her red blood cells were low. So, she and Lori took off to the Novak Center here in Louisville so she could get a transfusion of platelets and of blood. As you may recall, previous transfusions of platelets resulted in Lizzy spiking a fever, which resulted in an admission. This time, Lizzy did not spike a fever and she was able to come home Monday evening (Thank You, God!).
Today (Thursday) it was time to check her blood again. While her ANC remains 0, her red blood cells were at an acceptable level. However, her platelets were low again so she and Lori once again made the trip to the Novak Center here locally and she received a transfusion of platelets.
Lizzy is feeling great and acting, well, acting like Lizzy! Full of energy and (sometimes) mischievousness, she ALWAYS keeps Lori and I on our toes, and usually gives us lots of good laughs along the way!
As of tomorrow, we have 4 more weeks of treatment, followed by weekly checks of her blood counts until they recover, then a new set of baseline scans 2-3 weeks after the last treatment, and then finally an outpatient surgery to remove her port. We are oh so close. The excitement is building!!
As always, thank you so much for all of your love and support. As Paul says in the book of Philemon, “I always thank my God as I remember you in my prayers.”