Following Lizzy and her battle with Wilms Tumor (Nephroblastoma)
Lori and Lizzy came home around 2:30p this afternoon. As soon as they walked in the door, Lizzy headed straight for the bathtub! When her port is accessed and she is hooked up to an IV, she can’t have a bath – instead she gets cleaned up each day with special bathing wipes.
Well, Lizzy loves her bath time so she was very eager to jump in and take a real bubble bath when she got home!
Lizzy was admitted on Friday for what is scheduled to be the final 5-day Admission! That means we are getting close to the end of her treatment plan. Friday marked the beginning of the final 6 weeks of the plan, and man-o-man, are we getting anxious in anticipation of reaching the end!
Unfortunately, things got off to a pretty rough start on Friday.
Exactly one year ago – January 23, 2018, Lizzy’s big sister Treasure officially became a Brooks! Treasure’s journey with our family is a story deserving of its own blog site, with a multitude of ups and downs, and filled with drama and suspense, heartbreak and overflowing joy. In the end, after 5 years of craziness, a judge on January 23 looked at us, looked at Treasure, and officially declared that Treasure was our daughter!
She is home!!! Her ANC rose to 990 (up from 120 yesterday) so she was well above the 200 threshold and got to come home!! Oh my goodness, it is so good to have her home!
Thank you so much for the prayers and support. Lori and I are both feeling refreshed and after a couple of days of being discouraged, we are both renewed mentally and emotionally. We know God’s got this and we just need to keep on keepin’ on!
Lizzy’s ANC improved today, but not enough to come home. Saturday her ANC was still 0 and today it rose to 110, but the threshold is 200, so we are praying for another big jump tomorrow so she can come home.
Thank you for all of the prayers, texts and words of encouragement. Lori and I kind of hit a wall on Friday with the unexpected admission and we both were just spent.
Lizzy had a good night overnight with no fever and restful sleep. Thank you everyone for your prayers and offers of help and support!
She woke up this morning and was ready to start playing. First up, some Play Doh!
Lizzy was scheduled for an outpatient chemo treatment today in Cincy. When they checked her blood counts, it was determined that she also needed a platelet transfusion and a blood transfusion. She received the chemo treatment and the platelet transfusion. However, after the platelet transfusion, they checked her temperature and she had spiked a fever.
Continue reading “Another Outpatient visit turns into an Inpatient Admission”