I can barely type this as the tears stream down my face – Lizzy is coming home!! It has been an exhausting, and sometimes frustrating, eight long days since we made the mad dash to the ER in Louisville because of Lizzy’s fever. And at some point today, we will finally come back home!
Merry Christmas everyone!!!
A friend of my mom’s sent an email this weekend that I want to share with everyone. In the email, the friend explained that she had been reading Psalm 59 and God brought to her mind the cancer that is attacking Lizzy and so the words David wrote in this Psalm became words about Lizzy’s battle. This email touched Lori and I deeply, so I’ve copied and pasted it below:
Lizzy’s ANC is still 0 as of this morning. So, it looks like she will be spending Christmas in the hospital. While this isn’t what Lori and I had hoped for, we are in agreement that (1) God is in control and (2) with her blood counts this low, meaning she basically doesn’t have an immune system capable of fighting off anything right now, we would much rather her be in a clean sterile environment like the hospital.
Lizzy is still in the hospital and her ANC (blood count) is still zero. So, she won’t be coming home today or tomorrow. The blood test results also showed her platelets starting to drop again. This is more than likely due to the fact that her body hasn’t started producing its own platelets yet and the platelets she received from the transfusion are starting to die off.
I have been remiss in posting this update – I apologize. Things went a bit haywire Tuesday night and I’m just now getting a chance to sit down and type. Lori and I had anticipated that this week might get a little crazy because the week after Lizzy’s 5 day admissions have always produced some craziness, but this week has been more crazy than even we expected!
For the second year in a row, our church is sponsoring a free family-friendly event called Celebrate Christmas Together. It is a wonderful event that includes things like train rides, an outdoor ice-skating rink, inflatables, snowball frenzy, crafts, musical performances, carolers, live nativity, storytelling and many other fun things to do and see, and all of it is free! It really is a unique event and helps set the tone for a wonderful time of year as we celebrate the birth of Jesus. If you are in the Louisville area, we strongly recommend you check it out! (the event runs nightly this week (Dec 10-14) from 5p – 9p and 5p – 10p on Friday).
As great as this event is, it is not something we imagined we would get to enjoy this year because of Lizzy’s ongoing treatments. She is in the middle of back-to-back 5 day inpatient treatments (the most recent of which was supposed to start this past Friday but got postponed) and those treatments just wreak havoc with her blood counts and thus her immune system. We have tried very hard to keep Lizzy away from any sort of crowd or situation where she would be exposed to a lot of germs.
Lizzy’s ANC increased today just enough to clear the threshold to be discharged. We will monitor her closely for any fatigue or bruising or fever, but otherwise we hope to spend the next few days at home. Her next scheduled admission is this Friday. While she was in Norton Children’s, she had several visitors and was involved in lots of activities –