First, our family hopes each one of you had a wonderful Christmas time filled with family and friends. Having been 1,000 miles from home in a hospital room on Thanksgiving made being at home surrounded by family that much sweeter this Christmas. We are learning more acutely the concept of being “present” each moment of each day, because in the blink of an eye, it could all change.
Words are important. In their simplest form, they are just letters put together in certain patterns. Letters by themselves are relatively insignificant, but when certain letters are put together in certain patterns, words are formed. And while on a practical level words are just strings of letters, words are so much more that. Words carry meaning. Words convey emotion. Words have power. Words have implications. And you don’t need a lot of words for meaning, emotion, power and implications to occur. Today, it only took 3 words for this to happen.
We’ve had some up and down moments over the past several days while we continue to wait for news about what the doctors have decided about Breach or No Breach. And Yes, that means we still haven’t heard anything from the doctors about a final determination.
Late Thursday night we had our first few episodes of nausea with Lizzy. The first time it happened, Lizzy was laying in her bed and told Lori that her belly hurt. Lori went in Lizzy’s room and laid down beside her to comfort her. A few minutes later – here it came! Lori jumped out of bed and rushed Lizzy to the bathroom. There was a trail of “stuff” from the bed to the hallway to the toilet. I don’t think Lori has moved that fast in a long time! Sitting in front of the toilet, Lizzy looked up at Lori and said “I can’t wait to tell Treas that I threw up in the middle of the night, and this is scary”! Always thinking about her big sis!
Chemo day #2 started early – we were in Cincy by 8am this morning! And we got to enjoy some sleet/freezing rain along with Cincy rush hour traffic. Woohoo!
Our new home-away-from-home is the Cancer and Blood Diseases Institute Pediatric Center. The staff and providers have been absolutely outstanding and have gone out of their way to make us feel comfortable and supported.
We just received a call that the bone biopsy results came in and it is NEGATIVE!! This means that pesky little spot on her pelvic bone is NOT related to the tumor. It is also means it is NOT Stage 4, which is HUGE because Stage 4 would have meant a longer treatment with more potent drugs.
Today was Lizzy’s first chemo day. But before we could make the trip to Cincy, Lizzy got a visit from one of Santa’s elves (aka Big Brother Colson):
Lizzy had a bone biopsy this morning to figure out what the spot is on her pelvic bone. The interventional radiologist seemed to think it was probably a natural occurrence, but we have to be 100% sure, thus the biopsy. We were told we should get results of the biopsy in 2-3 days.
We met with Dr. Geller and his team today at Cincinnati Children’s. He reviewed all of the results to-date and discussed what is still unknown. Basically there are still 2 unknowns – (1) what the spot is on her pelvic bone; and (2) getting a second opinion on the pathology report from a nationally renown pathology group in Chicago.